Coproducing health and well-being in partnership with patients, families, and healthcare providers: A qualitative study exploring the role of an epilepsy patient portal


Zita McCrea, Kevin PowerRachel Kiersey, Maire White, Annette Breen, Sinead Murphy, Laura Healy, Hugh Kearney, Brendan Dunleavy Sean O’Donoghue, Veronica Lambert, Norman Delanty, Colin Doherty, Mary Fitzsimons.

Coproduced epilepsy care sees people with epilepsy (PwE), their care-proxies, and healthcare providers (HCPs), working together as partners to build strong relationships, improve communication, trust, and share decision-making. Coproduction underpins good quality patient- and family-centered care (PFCC) that is responsive to individual patient needs, preferences, and values. By facilitating information sharing and exchange between partners, electronic patient portals (ePortal) can enable coproduction. This paper explores what HCPs, PwE, and their care-proxies value from their user experience of PiSCES, the Irish epilepsy ePortal.


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